Mouth sores. These painful little cuts or ulcers in the mouth can certainly make life miserable. In fact, eating, drinking and even speaking can become very difficult. While there currently isn’t any guaranteed way to prevent them, the good news is there are ways to reduce your child’s risk of getting them. In addition, there are ways to control and manage mouth sores if your child does in fact have them.read more →
The power of a Wish List gift and the magic that happens when the package arrives reaches far beyond any words which could accurately articulate the transformation that occurs. Smiles immediately replace frowns, enthusiasm quickly replaces sadness, and tough days all of a sudden seem a little brighter.
By Les Friedman, Mikey’s dad
Boredom – of all the side effects related to pediatric cancer patients’ treatment, boredom is probably not high on the worry list. But for kids, boredom and loneliness can significantly add to the struggles they face every day trying to cope with their treatment. To them, hospitals can feel like a whole lot of waiting around. And on days when they are feeling a little better, the boredom can be excruciating.
Mikey’s Nuggets of Wisdom
“There is a pressing importance to remind pediatric cancer patients that life exists outside of cancer.” Mikey’s journal entries contain hundreds of nuggets of wisdom like this.
Mikey’s insight was reflected in the way that he lived and the words that he wrote. Crafted with the skill of a master many years beyond his age, Mikey’s expressive writings offer both a philosophical perspective and a unique glimpse into the world of a pediatric cancer patient.read more →
Fifty Ways People Can Help
by Les Friedman, Mikey’s dad
When your child has cancer, his life is turned upside down and your entire family is catapulted into a new world. What was once manageable becomes challenging. Mowing the lawn, getting dinner on the table, changing oil in your car or walking the dog – there’s just not a lot of time for these things. Accepting help from other’s is difficult for many of us. But when your child has cancer, it is time to accept help wherever you can.
“RACE for Children Act” is raising hope for new therapies for pediatric cancer. A recent article in The Wall Street Journal discusses exciting trials that are occurring as a result of the RACE. According to the article, many pharmaceutical companies are already gearing up for more studies. As a result, some pediatric trails may be as early as this year!
Crystal Mackall, researcher and professor of pediatrics at Stanford University School of Medicine, told The Wall Street Journal, “We have lots of drug companies who want to speak with us suddenly. Before, we went hat in hand, cajoling.” And, Dr. Hubert Caron of Roche Pharmaceuticals called the legislation “a game-changer.”
Beyond a Mikey’s Way Day – the Mikey’s Way Wish List
Each year, the wheels of our Mikey’s Way Day “Connection Cart” roll across numerous pediatric oncology/hematology floors throughout the country. It is at this time, during a Mikey’s Way Day that every patient in every room on the pediatric oncology/hematology floor has the opportunity to select an electronic. But, not every pediatric oncology patient is in the hospital the day of a Mikey’s Way Day. That’s why we have the Mikey’s Way Wish List.
The Mikey’s Way Wish List
If for some reason we miss a child on the day of our visit, a Child Life Specialist from the hospital can fill out the Wish List form and send it along to us. Once we receive the form, we package the child’s special gift and ship it directly to him or her.
Meet a Few of Our Wish List Kids
It Began With One Wish
Mikey’s Way Foundation was founded with one wish. One wish ignited by a selfless, compassionate desire to help kids cope with cancer. Mikey chose to use his own Make-A-Wish for the purpose of helping others. His desire to help others is indeed a testament to the very person that he was. read more →
Financial Toxicity of a Pediatric Cancer Diagnosis
by Les Friedman, Mikey’s dad
Treating pediatric cancer is expensive. Rising medical costs wreak havoc on a family’s finances and, in time, become yet another toxic side effect of cancer treatment.
Medical bills quickly fill our mailboxes as costs mount for hospital stays, clinic visits, medicines, tests and surgeries. In addition, unexpected costs for procedures or treatments for infections, dehydration or pain can add to rising costs. read more →
Join Mikey’s Way Foundation as we observe National Childhood Cancer Awareness Month!
Every year in the United States, over 15,000 children under the age of 21 are diagnosed with childhood cancer. The average age at diagnosis is 6 years old. Approximately one-quarter of those diagnosed will not survive the disease.
Childhood Cancer Awareness
At Mikey’s Way, we see every day as an opportunity to raise awareness about childhood cancer, but September is an especially unique month because it’s Childhood Cancer Awareness Month. read more →